![]() Call for projects: MAXQDA Grants in June 2023 – Embracing LGBTQI+ Pride More information will follow before the respective months. March 2024 will be all about research on women’s social inequality in the wake of International Women’s Day and a call for papers for feminist research on women’s empowerment. To honor and celebrate Black History Month in February 2024 we aim to promote research related to Black empowerment and against social inequality based on ethnicity and race. Our second edition will be in October 2023, highlighting research projects to fight against climate change and promoting environmental sustainability. For specific questions related to preparing a DMS plan for the generation of secondary data for your research, contact your NIA Program Officer.The first round will take place in upcoming June 2023, coinciding with Pride Month and highlighting LGBTQI+ related research. If you have questions, please refer to the FAQs About Secondary Research or leave a comment below. With these guidelines in mind, secondary research can be quite valuable to your studies. Cloud Use Statement and Cloud Server Provider Information (as applicable).Attestation of Alzheimer’s Disease Genomics Sharing Plan (for Alzheimer’s and related dementias genomic research).Data Distribution Agreement (for NIAGADS) (PDF, 673K).NIH Institutional Certification (for large-scale genomic data generation).IRB approval to meet human subject protections (per regulation 45 CFR 46).Generally, data repositories with controlled access, such as the NIA Genetics of Alzheimer’s Disease Data Storage Site ( NIAGADS) or the Database of Genotypes and Phenotypes, require investigators to sign a Data Use Certification Agreement (PDF, 775K) to ensure protection of sensitive data.Īdditional potential requirements can include: There may be requirements to access and use secondary data or specimens as stipulated by NIH-supported scientific data repositories or other sources of information. Often requires special techniques for statistical data analysisĪs you consider secondary research, be sure to get familiar with related regulations and rules.Details on previous data collection procedures may be scarce.Original data may not be a perfect fit for your current research question or study design.Potential downsides to consider might include: May be simpler (and expedited) if an Institutional Review Board waives the need for informed consent for a secondary research project.Can be less expensive and time-consuming than primary data collection.Enables use of large-scale data sets or large samples of human or model organism specimens.NIA is actively supporting secondary research through our recent Notice of Special Interest on the topic. It requires investigators, including those conducting secondary research, to describe the type of scientific data they plan to generate, and encourages good data sharing practices when performing secondary research. That same policy also emphasizes the importance of sharing data gleaned from secondary research. Through previous blogs, NIA provided updates and tips on the NIH Data Management and Sharing (DMS) Policy. Secondary research maximizes the usefulness of data and unique specimens while minimizing risk to study volunteers since no new procedures are needed. For example, the same specimens originally collected for a clinical trial could also be used in secondary genomic research. ![]() Secondary research uses existing data or specimens initially collected for purposes other than the planned (or primary) research. “Reduce, reuse, recycle” isn’t just a good motto for preserving the environment, it’s also a smart scientific principle, thanks to the value of secondary research. Data sharing Funding Opportunities Scientific Resources
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